Life After Diagnosis: Navigating What You Love With Urothelial


Trust your support system
embracing your style
To exercise
eating out
Trip
flirt

Trust your support system

Whether it’s family, friends, religious groups, support groups, professional counselors, or others, it’s important to establish a support system to help you cope with your diagnosis, aftercare, and daily chores. A cancer diagnosis can trigger feelings such as depression, anxiety, and worry. Therefore, patients can benefit from people to talk to, both personally and professionally.

embracing your style

Women who have had surgery and have to wear an ostomy bag after being diagnosed with bladder cancer may worry that they can no longer wear the things they love. It’s important to do what works for you. Some options include:

  • high waisted pants
  • Shorts
  • skirts

Wearing loose-fitting clothing that isn’t too restrictive or layered can help support your ostomy bag. In addition, pockets can be attached to belts, belts and underwear to cut under your regular clothes for safety and convenience.

To exercise

Maintaining health and exercise are just as important for physical and mental health after diagnosis. Talk to your healthcare provider about which exercises/changes are best for you.

eating out

Eating out at your favorite restaurants is also possible after you’ve been diagnosed with cancer. Strategies include:

  • Looking at the menu before going out
  • Eating a snack beforehand to prevent overeating
  • Asking questions about food preparation and nutrition facts
  • Informing the waiter about dietary restrictions

Also, don’t be afraid to ask for healthy substitutes. Talk to your healthcare provider or a nutritionist about which food options are best for you.

Trip

Traveling after diagnosis or during treatment is a matter of preparation. Some helpful tips include:

  • using ice packs to keep temperature-sensitive medications cool
  • Receive a letter from your doctor stating your condition and your need for any medications and medical equipment
  • Packing your medications in easy-access carrying cases
  • Label all drugs for easy visibility

For those with an ostomy bag, accessibility to items in hand luggage is particularly important, along with packing extra supplies for care and comfortable, supportive clothing.

flirt

Whether it’s coping with a new diagnosis or seeking treatment, it’s important to make sure you’re happy with this new normal. Choose a comfortable and convenient location for your appointment and only share your diagnosis when or when you are ready. When it comes to intimacy, deciding ahead of time what you want to say and writing it down can help guide the conversation. Communicating with your partner about intimacy not only helps strengthen the relationship but also builds trust.

This resource was created with the joint support of Astellas and Seagen.



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